Hear community perspectives on topics ranging from navigating a diagnosis to reflecting on clinical trial experiences.
We previously lived in Central California and raised organically fed pork on pasture. When Kal was diagnosed with Duchenne...
My husband Keven and I have 3 kids and we’ve been homeschooling for more than 10 years. Here’s a little background of how we got here.
An Interview With Seda Filenko As one of the first families dosed with gene therapy, what were some of your thoughts, feelings, hopes, fears, anything you really considered as you made the decision to enroll in the trial? The idea…