Hear community perspectives on topics ranging from navigating a diagnosis to reflecting on clinical trial experiences.
Elijah Stacy is the founder of the 501(c)(3) nonprofit Destroy Duchenne, which he started at the age of fifteen. He is determined to advance gene editing and gene therapy to save his life, his brother’s life, and the lives of thousands of people around the globe who have been diagnosed with Duchenne.
My name is Katie Kuhl and I am a junior in high school right now. I am mostly focused on school and am involved in the math team, DECA, pre-med club, student council, and volunteering at my local animal shelter…
We previously lived in Central California and raised organically fed pork on pasture. When Kal was diagnosed with Duchenne...
Jessica Curran is a DMD mother to her son Conner, CRD board member as well as a DMD patient advocate.