Get Involved

Join Our Events

Cure Rare Disease relies on our community to drive forward our mission of developing life-saving therapeutics for rare and ultra-rare disease patients and we couldn’t do it without you. Join us at one of our events or start your own. We have all the tools to help make your event successful.

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Fundraise Online

Facebook Fundraise

Create a facebook fundraiser through your facebook account


Donating the spare change from your credit or debit card

Start Esports Fundraising

Donate to our cause while streaming

Join CRD’s Endurance Team

Participate in a CRD Endurance race near you to join hundreds of individuals and families around the country raising money to create life-saving therapies with those with rare and ultra-rare diseases. You can also show your commitment by supporting or sponsoring a participant. Host a CRD 5K or walk. It’s a great opportunity to involve your community and support CRD along the way.

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Join The Registry

Your patient data is critical to helping Cure Rare Disease create life-saving therapies. By joining the CRD registry, you will be part of a global network that will help contribute to real scientific research and analysis. We will let you know when you might be a good fit for our research studies and future therapies.


Corporate Partnerships

The success of our model relies on the support and generosity of our visionary corporate partners who want to make a true impact in the lives of patients, their families and communities. As a corporate partner, your support enables our research and development to change the outcome of a rare disease diagnosis and, ultimately, save lives. Our corporate partnerships deliver high-impact engagement plans tailored to the needs of our partners to maximize the goodwill and social returns sought out by CSR programs. To learn more about our corporate partnership program, contact us below.

Contact Us

Shop with Us

Visit our shop for all your gear including t-shirts, sweatshirts, water bottles and more! We have it all so you can proudly show your support for Cure Rare Disease and help us fulfill our mission to develop life-saving therapies for rare and ultra-rare disease patients. 

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