September 7 is World Duchenne Awareness Day. At Cure Rare Disease, we're all too aware of Duchenne muscular dystrophy. It’s the reason we’re working tirelessly to change the way therapeutics are delivered.
Our patients and families drive the mission behind Cure Rare Disease, and many have been brave enough to share their own stories of living with rare disease. Today, we’re amplifying their voices with a round-up of a few of our most powerful blog post submissions.
An active member of the accessible gaming community, Vivek Gohil has found a meaningful way to help others through his work with accessibility and inclusivity.
Beau Bryan, father of Sawyer and Wesley Bryan, shares a father’s perspective on processing the emotional impact of a double Duchenne diagnosis.
CRD Community Engagement Director and Duchenne mom, Sarah Krieger, talks about putting one foot in front of the other and gathering resources along the way.
The Hamilton family recently made a cross-country move to help provide their son, Kal, with a higher quality of care and an accessible home.
Duchenne muscular dystrophy is a thief—of time, health, and so much more. During the pandemic, Kati Falger chose to find joy in the gift of togetherness with her son, William.