Our Proudest Press of 2021

An ever-growing community is vital to our work developing custom, lifesaving therapeutics. In 2021, our press coverage reached more people than ever before, helping to grow that community and educating the public on our work. It also amplified the stories from our patients, families, and the greater rare disease community across the country.

We are proud to share our top press stories of 2021:

1. Boston Globe: Mokol Lek, Ph.D.

Our close collaborator, Monkol Lek, talks with the Boston Globe about his motivation for the work he does and the science behind his Pediatric Cell Atlas project. 

2. Denver Post: Boulder family works with nonprofit to find treatment for rare disease

Learn more about the impact Cure Rare Disease's work has on patients like the Klassen family, a family with two diagnoses of Spinocerebellar ataxia type 3. 

3. Masslive: Twitch streamer, esports community rally behind Boston entrepreneur looking to cure brother’s rare muscle condition

Our esports fundraising efforts through Game for Cures are highlighted in this article by Masslive. 

4. Global Genes: Cure Rare Disease Enters Partnership with Curi Bio for DMD Gene Therapy

Global Genes explains the science behind our partnership with Curi Bio and what it means for our gene therapy. 

5. Rare Revolution Magazine: Sarah Krieger of Cure Rare Disease

In this Q&A, learn more about our Director of Community Engagement, Sarah Krieger, and the important role she plays at Cure Rare Disease. 

6. Patch: Organization Looks To Help Families Impacted By Rare Diseases

In this article, the annual Cure Rare Disease gala is highlighted as a means to helping four Connecticut families.

7. KGW8: Nonprofit starts fundraiser to help people with rare diseases

Learn more about our Strive for Five campaign and how it helps our patients like this family from Portland, Oregon.