September 2, 2022
About Muscular Dystrophy Awareness Month
Muscular Dystrophy Awareness Month takes place in September and is aimed at increasing awareness for all types of muscular dystrophy, including Duchenne muscular dystrophy and Limb-girdle muscular dystrophy, two diseases that CRD is working to treat. Throughout this month, various days are dedicated to raising awareness for different types of muscular dystrophy.
As a nonprofit biotech working to change the way treatments are developed for muscular dystrophies and other rare and ultra-rare diseases, increasing awareness and support for our work is critical to furthering our mission. Below are some ways you can support our research and development, and the rare disease communities we are working to treat.
CRD Outway Socks
CRD has partnered with Outway to launch a custom CRD-design sock. 100% of all proceeds from sales will be donated to CRD to support our therapeutic development programs. You can purchase your socks here. Feel free to post photos of you in your CRD socks and tag us with #crdoutwaysocks.
CRD Endurance Program
Join CRD’s Endurance Team! Participate in a race or hold your own event near you to join hundreds of individuals and families around the country raising money to create life-saving therapies for people with rare and ultra-rare diseases. Learn more about our Endurance Program, how you can involve your community, and support CRD along the way.
Upcoming CRD Community Events
Join the Bryan family on September 24, 2022 for the inaugural Bryan Boys Communi-Tea 5k. The event, which will take place in Tea, South Dakota will raise funds to help develop therapeutics for Sawyer (10) and Wesley (7) Bryan, who were both diagnosed with Duchenne muscular dystrophy, as well as other Duchenne patients. You can show your support by registering to participate in the 5k, becoming a sponsor , or making a donation.
The We Will for William Auction will take place online from October 20-23, 2022. The auction will offer a variety of items for you to bid on, and all proceeds will go towards funding research and a treatment for 4-year old William, who was diagnosed with Duchenne, and other DMD patients.
CRD Inspire Gala
On November 12, 2022, CRD will host our annual benefit, the Inspire Gala. The event will be held at our new lab space at 4 Research Drive in Woodbridge, CT, and includes gourmet bites, wine and spirits, live music, inspiring voices, a silent auction and live auction. Proceeds from the event will fund preclinical testing of advanced modalities targeted to specific gene mutations for our next cohort of patients, and will raise awareness about our work across the country. You can purchase tickets to attend the Inspire Gala here.
Muscular dystrophy therapies in the pipeline
Fourteen of CRD’s 19 current development programs target mutations in the dystrophin gene, which lead to Duchenne muscular dystrophy and Becker muscular dystrophy. Additionally, CRD has three therapies in the pipeline for the treatment of types 2b, 2g, and 2i of Limb-girdle muscular dystrophy. Learn more about our progress with these therapeutics here.
Our research and development efforts would not be possible without the support of our generous donors. As a 501c3 non-profit organization, over 93% of all donations go directly to the development of life-saving therapies. Donate now to help support CRD’s pipeline and progress.