Blog

June 10, 2021

How We Adapt Summer Fun For Our Son Living With Duchenne

May 26, 2021

Finding the Perfect Home for All Our Family’s Needs

We previously lived in Central California and raised organically fed pork on pasture. When Kal was diagnosed with Duchenne...

Read Now

popular

How We Adapt Summer Fun For Our Son Living With Duchenne

Finding the Perfect Home for All Our Family’s Needs

Ehlers Danlos Syndrome (EDS) Awareness

Building a New Future: Our Family’s Floor Plans to a New Accessible Home

Choosing Gene Therapy: Reflections on Dosing, Before, During and After

Finding Career Motivation in a Rare Disease Diagnosis

30 With DMD: Finding My Life’s Purpose

Latest Perspectives

Tell Us Your Story

Share a blog post telling us your rare disease experience.

Contact Us